Don’t get depressed with what others think about you. Hello, my name is Vaishnavi Guntewar from Chandrapur, Maharashtra. My illness journey started in Feb 2012; I was writing my 12 exams; it was my first paper where I noticed stiffness in my fingers, which did not happen before, and occurred while writing the next exam. …
if I cannot cure it I will not let it rule my life I am another sclero warrior, suffering from over two decades.my journey started with Raynaud. My diagnosis initially made time stop for me but I am very strong and determined person and I choose to fight. I developed ILD over the years and …
I will fight no matter what the situation Hello my name is Gowthami, I am a scleroderma warrior, my journey started in 2017 with rashes which in 6 months were diagnosed as MCTD (multiple connective tissue disorder). It was 2018 by the time I started my medication, just after couple of months I started experiencing …
I am not giving up on anything and I am a warrior. I was diagnosed in January 2018, though symptoms started long before. I think I may have Scleroderma from 2013.. My initial symptoms were skin darkening, tightening,itching,raynauds, digital ulcer fatigueness, loss of appetite and breathlessness. Though I saw a lot of doctors in between, …
Today I am able to run for 15-20 mins without any struggle. December 2013 February 2014 had many ups and downs in life. On a trip to South India – Bangalore, Mysore, Ooty, Coorg, Kodaikanal. It was a 10 days trip. No symptoms of Raynauds although I could feel chills on my fingers. Post my …
“God gives his hardest battles to his toughest soldiers.” I was doing my MSc (Organic Chemistry) in the Year 2011, then I started showing symptoms – My body-color became dark, skin became shiny and I started losing weight. My Family doctor termed it as Anemia. I was given Vitamin B12 Injections and Protein Powder as …
Once I gave up hope of living, now I dream of a new life again. I was 19 years old in 2007 when I got married into a Joint Family, in a village which is in a small city called Haldia, 80 km. from Kolkata, West Bengal. I had a second child in 2012 at …
he said just 2 words “I UNDERSTAND “ My journey started bout 8 yrs back, first 2 yrs were spent going around the circle with doctors for diagnosis. Sounds funny, it was actually. It all started with excruciating pain in my forefinger and thumb tips, the pain was like someone is driving a nail in …
I learned never to give up ! My scleroderma story started in 2008 with hardening and tightening of skin, swelling, joint pain. After undergoing a number of medicines and tests finally after 2 years that is in 2010 it was discovered that I had Scleroderma or Systemic Sclerosis. Scleroderma, I had heard that first time in …
Never say Die Spirit! Co-founder, sclerodermaIndia In Jan 2006, i saw my fingers turning blue in extreme cold, but i ignored them. And during the same year, i started having bronchitis, but did not think about it much as i have family history of Asthma. My doctor prescribed an inhaler and i went on with …
